Support for palliative care

In response to the recent Palliative Care Needs Assessment, under the Greater Choice for At Home Palliative Care program, Brisbane North PHN is working to:

• strengthen the Brisbane North Palliative Care Collaborative, an active group of stakeholders aiming to enhance service responsiveness, integration, quality, and coordination of care through networking, information exchange, and shared learning
• undertake workforce support and engagement activities to improve the skills, knowledge, and confidence of workers supporting quality at-home palliative care in the region
• to commence community development activities to grow compassionate communities that enable agency and choice for people with life limiting illness and their loved ones, supported by their community.

For more details, see the PHN’s response to the Palliative Care Needs Assessment 2025 document

https://www.clinicalexcellence...Brisbane North PHN region specific resources

• Specialist Palliative Care Services Available to Adult in the Brisbane North PHN region

On demand support

• PallConsult

Information Standards

• CareSearch: the Australian Government supported central repository for palliative care information
• Paediatric Palliative Care: An Australian Government supported website for paediatric palliative care information

Guidelines and Standards

• Prompts for End-of-Life Planning (PELP) Framework
• Palliative Care in HealthPathways
• Community-based Palliative Care Anticipatory Medicines: Guidance for Queensland
  • All templates (Best Practice, Medical Director)
  • TEMPLATE: Appendix 6: Anticipatory Medicines Cover Letter to Pharmacist (Best Practice, Medical Director)
  • TEMPLATE: Appendix 11: Palliative Care Medicine Management Information letter (Best Practice, Medical Director)
  • TEMPLATE: Appendix 12: Expected death letter (Best Practice, Medical Director)
  • Importing instructions for medical software
    

• Managing palliative care symptoms: guide for health professionals
• PBS Pharmaceutical Benefits for Palliative Care
• National Palliative Care Standards for All Health Professionals and Aged Care Services (non-specialist palliative care services)
• Guidelines for the handling of palliative care medicines in community services
• Care plan for the dying person: Health professional guidelines
• Therapeutic Guidelines: Palliative Care
• Queensland Health Advance Care Planning Clinical Guidelines

Tools and checklists

• Terminal care planning checklist for nurses in the community
• Grief and Bereavement Resource Hub
• Three questions to ask yourself that make difficult conversations about serious illness easier - from Health Canada
• Find a local Palliative Friendly Pharmacy
• Palliative Care Outcomes Collaboration (PCOC) clinical assessment tools

CPD

• PallConsult’s Advance Care Planning Education modules for Queensland Clinicians
• Program of Experience in the Palliative approach (PEPA) and the Indigenous Program of Experience in the Palliative Approach (IPEPA)
• End of Life Law for Clinicians (ELLC)
• PCC4U- palliative care education and resources for all health professionals
• The Advance Project
• Project ECHO: Palliative Care
• Caring@Home education modules for health professionals
• Palliative Care Connect - Palliative Care Education for primary care from GPEx and South Australia Health
• Centre for Palliative Care Research and Education (CPCRE)

Groups and Networks

• Brisbane North Palliative Care Collaborative: a cross-sector group meeting improve palliative care in the Brisbane North and Moreton bay region
• Queensland Palliative Care Clinical Network

Apps

• palliMEDS
• Caring@Home and Caring@Home Indigenous
• CareSearchGP

Programs

• Medical Aids Subsidy Scheme- Palliative Care Equipment Program (MASS-PCEP)
• Medical Aids Subsidy Scheme- Palliative Care Syringe Driver Program (MASS PCSDP)

Resources for General Practice

• Guides to using MBS items to support delivery of palliative care
• Supporting advance care planning in general practice: Guidance on the use of Medicare Benefits Schedule Items
• Supporting a planned home death: The GP’s Checklist
• Palliative Care in the RACGP Clinical Guide

Resources for pharmacists

Living and dying well for people with disability: palliative and end of life care knowledge framework

• Living and dying well for people with disability: palliative and end of life care knowledge framework
• Easy Read- About the Living and dying well for people with disability: palliative and end of life care knowledge framework
• Introductory video
• Deeper dive video
• Implementation support tools
  • Knowledge framework self-assessment tool for Individuals- Fillable PDF
  • Knowledge framework self-assessment tool for Individuals- Print Version
  • Example knowledge framework self-assessment tool for Individuals
  • Knowledge framework self-assessment tool for Organisations- Fillable PDF
  • Knowledge framework self-assessment tool for Organisations- Print Version
  • Example Knowledge framework self-assessment tool for Organisations
  • Available Education and Training Opportunities Spreadsheet

PHN resource

• Palliative care for people with disability: A resource for health professionals

Other education and resources

• Talking End of Life with people with intellectual disability (TEL program)
• Improving palliative care services for people with an intellectual disability form University of New South Wales- Toolkits and Easy Reads to support palliative care
• Easy English and AUSLAN resources about palliative care, dying, death, grief and loss from Palliative Care Victoria
• Death in care (disability) factsheet- Coroners Court of Queensland
• National Disability Services (NDS) information and resource page on palliative care

General

• ELDAC (End of Life Directions for Aged Care)
• PEPA Aged Care- palliative care specialist providing support and training through reverse PEPA placement
• The Advance Project- Dementia
• palliAGED
• Choice, dignity, quality: How advance care planning helps meet the strengthened aged care standard

Community Aged Care

• Holding Conversations on Death and Dying: Suggested training for Personal Care Workers in Community Aged Care in the Brisbane North PHN region
• Support at Home End of Life Pathway

Residential Aged Care

• Caring in aged care homes - resources for carers considering residential aged care for their person.
• Specialist Palliative Care-in Aged Care (SPACE) program
• Guiding principles for medication management in residential aged care facilities
• Guide to the pharmacological management of end of life (terminal) symptoms in residential aged care residents: A resource for general practitioners
• Palliative Aged Care Outcomes Program (PACOP)
• Residential Aged Care End of Life Care Pathway (RAC EoLCP)

Aboriginal and Torres Strait Islander people

• Sad news Sorry Business: Guidelines for caring for Aboriginal and Torres Strait Islander people through death and dying
• Indigenous Program of Experience in the Palliative Approach (IPEPA)
• First Nations resources from caring@home includes fact sheets, step by step guides, wall charts, medicine books, and training videos
• Gwandalan
• Our Mob and Cancer
• Information from CareSearch
• Advance Care Yarning
  • Advance Care Yarning Booklet
  • Video: Advance Care Yarning. Your Care, Your Choice, Your Belonging
  • Video: Advance Care Yarning. Forms to support you
  • Video: Advance Care Yarning. A Family Story
  • Other support resources
• Resources for culturally safe practical care and medicines safety

Children and young people

• Paediatric Palliative Care
• Quality Of Care Collaborative Australia (QuoCCA)
• A Practical Guide to Palliative Care in Paediatrics (the green book)
• Jaba Pepeny (Star Baby): Supporting your journey after losing bub

People from Culturally and Linguistically Diverse backgrounds

• Information from CareSearch
  
• ACP resources for culturally and linguistically diverse people from the Statewide office of Advance Care planning
• Caring for Muslim people at the end-of-life (2026) - by South Australian Palliative Care Services
• Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims (J Palliat Med. 2022)

People who identify as LGBTQIA+

• LGBTIQ+ Inclusive Palliative Care eLearning modules for healthcare providers
• Information from CareSearch
• Being an LGBTIQA+ carer (CarerHelp)

Adult

• Metro North Health Specialist Palliative Care
• Karuna Hospice Services
• St Vincents Community Palliative Care
• Wesley Palliative Care

Paediatric

• Paediatric Palliative Care Service, Childrens Health Queensland
• Hummingbird House

More Information

Contact us