Joint Solutions - Young-onset Dementia: Pathways to Care

University of Melbourne

We are currently working on a research project on young-onset dementia (YOD) care, which has been auspiced by the Young Persons in Nursing Homes National Alliance through a governmental grant. It aims to provide data on the gaps and barriers along the pathways of care for YOD, from pre-diagnosis to post-diagnosis.

We are collecting information via anonymous questionnaires (followed by focus groups), and would like to hear from the following stakeholder groups:

The survey data will help the project to inform a national system of care and roadmap of responsibility for people living with young-onset dementia.

We acknowledge the Traditional Custodians within our region: the Jagera, Turrbal, Gubbi Gubbi, Waka Waka and the Ningy Ningy peoples of where we meet, work and learn. Brisbane North PHN is committed to reconciliation. Our vision for reconciliation is where the stories of our First Nations’ people are heard and shared, and networks are formed.