Joint Solutions - Young-onset Dementia: Pathways to Care

University of Melbourne

We are currently working on a research project on young-onset dementia (YOD) care, which has been auspiced by the Young Persons in Nursing Homes National Alliance through a governmental grant. It aims to provide data on the gaps and barriers along the pathways of care for YOD, from pre-diagnosis to post-diagnosis.

We are collecting information via anonymous questionnaires (followed by focus groups), and would like to hear from the following stakeholder groups:

The survey data will help the project to inform a national system of care and roadmap of responsibility for people living with young-onset dementia.